In addition to the numerous other challenges our son, Max, faces, he also has a condition called Cataplexy. Cataplexy sounds like something you'd find in an airport, as in "You'll need to take the cataplexy over to Terminal 5" or "Someone accidentally lowered the cataplexy onto one of the baggage handlers."
Cataplexy causes sudden, temporary paralysis. All of your muscles go slack and you collapse. It's kind of like what most people experience after sitting in the waiting room of a doctor's office for a long time. Half way through a People magazine and selections from Kenny G you wonder if you'll ever be able to walk again.
Unfortunately, it's not as gradual as when you're waiting to see the dermatologist. With cataplexy, it can happen with no warning. One minute Max is up and walking around and a second later he is in a heap on the floor. With some people, symptoms such as these might lead to a diagnosis of Alcoholism. However, as protective parents, we have tried to limit Max's time in bars to just three days a week.
Hi, I just wanted to let you know how interested I was hearing about your son. I also have Cataplexy. Fortunatly I am a rare one who does not have narcolepsy. Also I've only fully collasped once or twice my whole life. Usually I'm just unable to speak/walk/ or hold anything. I hope doctors can find something to help your son. They treated mine with antidepressants. Unfortunatly since I was a teen who was not depressed it had negatives effects and I stopped taking it.
Also, I used to get attacks 4 or 5 times a day as a child. But as I've grown up they seem to be coming on less frequently.
I hope all turns out well for your family and Max.
Posted by: Elizabeth | January 15, 2009 at 09:08 PM